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Jay's Chronic Pain Journal

Jay's Chronic Pain Journal

Living with Chronic Pain

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Category Archives: Uncategorized

Got the 6 month oil change.

Apparently, my stimulator battery is similar to a car engine and needs an oil change about every 6 months. Since this form of maintenance was never laid out for me, my last ‘oil change’ was 18 months ago. The difference is night and day with regards to before and after the oil change. I’m certainly …

Continue reading “Got the 6 month oil change.”

Posted byjaymac52 Apr 2021Posted inUncategorizedLeave a comment on Got the 6 month oil change.

What to do?

What are you supposed to do when your pain gets so intense that your stimulator medication do absolutely nothing? I’ve spent my morning crying and dealing with left leg pain that feels like a heart beat of shooting pain down my leg. I know this will eventually pass but it’s hard to see the future …

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Posted byjaymac524 Mar 2021Posted inUncategorized1 Comment on What to do?

Boy, arthritis is fun!

Last October, I was diagnosed with rheumatoid arthritis. Since there’s not a test to figure out what medication to take, it’s just all trial and error. Six months into this, I still don’t have the right medication. What I do have are horror stories from the two most recent meds: First one made so sick, …

Continue reading “Boy, arthritis is fun!”

Posted byjaymac523 Mar 202123 Mar 2021Posted inUncategorizedLeave a comment on Boy, arthritis is fun!

My Hungarian Stalker

Years ago I had a stalker living in Budapest named Charles. To give you a date range, I still had a land line and the Patriot Act was pretty new. I realize it’s not easy to have a stalker living so far away but he was persistent. He called all the time, wrote multiple letters, …

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Posted byjaymac525 Jan 2020Posted inUncategorizedLeave a comment on My Hungarian Stalker

Learning Spanish

I started studying Spanish in March of 2018 but started Duolingo last summer. Today marks one whole consecutive year doing lessons on the app. I’m extremely proud of myself for sticking with it.

Posted byjaymac531 Jul 2019Posted inUncategorizedLeave a comment on Learning Spanish

My constant pain

I haven’t written in awhile because blogging was making my pain worse. It was reminder after reminder of the pain I live in. I’ve had the stimulator for almost 3 months and it’s working fine but my old back pain is back and back worse than ever. What do you do to manage it? Please …

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Posted byjaymac523 Jul 2019Posted inUncategorizedLeave a comment on My constant pain

Proud

I’ve been studying Spanish for a little over a year now but started using the Duolingo app last summer. Today, I hit 300 days in a row and I’m super proud of that.

Posted byjaymac527 May 2019Posted inUncategorizedLeave a comment on Proud

It’s been awhile…

I’m sorry I haven’t posted in a bit but I think I needed a little break. The reason for the break is that having the stimulator implant isn’t going as well as the trial did. I had about 80% relief during the trial and maybe about 30% with the implant. Plus, no one can really …

Continue reading “It’s been awhile…”

Posted byjaymac521 May 2019Posted inUncategorizedLeave a comment on It’s been awhile…

Day 6 with spinal cord implant

Here’s another video about what’s going on. Trying to stay optimistic.

Posted byjaymac52 May 2019Posted inUncategorizedLeave a comment on Day 6 with spinal cord implant

Another stimulator day

Posted byjaymac530 Apr 2019Posted inUncategorizedLeave a comment on Another stimulator day

Day 4 after receiving the spinal cord stimulator implant.

Posted byjaymac530 Apr 2019Posted inUncategorizedLeave a comment on Day 4 after receiving the spinal cord stimulator implant.

Implant Day!

I’m at Northwestern now about to check in. I’m excited but want this day to be over. It’s been a great week during the trial period but also a long week. I’m just ready for the final steps and recovery to begin.

Posted byjaymac526 Apr 2019Posted inUncategorizedLeave a comment on Implant Day!

Day 6

Posted byjaymac525 Apr 2019Posted inUncategorizedLeave a comment on Day 6

Day 5

Posted byjaymac524 Apr 2019Posted inUncategorizedLeave a comment on Day 5

Day 4

Posted byjaymac523 Apr 2019Posted inUncategorizedLeave a comment on Day 4

Day 3

Posted byjaymac522 Apr 2019Posted inUncategorizedLeave a comment on Day 3

Day 2

Posted byjaymac521 Apr 2019Posted inUncategorizedLeave a comment on Day 2

1am morning after surgery

Posted byjaymac520 Apr 2019Posted inUncategorizedLeave a comment on 1am morning after surgery

Post surgery

Posted byjaymac519 Apr 2019Posted inUncategorizedLeave a comment on Post surgery

Surgery day

I’m heading to the hospital in a bit to start the spinal cord stimulator trial. I’m nervous and excited but also hopeful. Wish me luck!

Posted byjaymac519 Apr 2019Posted inUncategorizedLeave a comment on Surgery day

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American Chronic Pain Association – Chicago Chapter

American Chronic Pain Association – Chicago Chapter

The American Pain Association

The American Pain Association

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